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I need a donor to save my life

8:57am Saturday 5th July 2008

comment Comments (12)   Have your say »

By Emma Streatfield »

A DAD is asking for help to ensure he sees his two-year-old daughter grow up.

On the face of it Paul Cole, 42, of Conan Doyle Walk, Liden, appears a perfectly normal man, who looks after his wife Louise, 34, and young daughter Lucy.

It would mean so much that I've got a chance of fighting leukaemia and being a father and husband again

Paul Cole

Only his hair loss gives away the fact that a few months ago his world was turned upside down by leukaemia.

But he says four pin pricks could potentially save his life. That is all it takes to find a potential bone marrow match.

"It's the best gift a human being can give to another," he said.

"My first question would be, would you like to save a life? - there's not many people who would say no to that."

Despite his illness Paul is determined to make a difference for fellow leukaemia sufferers by raising awareness about bone marrow donation.

He also hopes to set up a clinic in Swindon to get people registered and all he would need is a hall with an adjoining room and a date.

Like 7,000 other people in the UK, Paul has been told he needs a bone marrow donation to survive.

"It would mean so much that I've got a chance of fighting leukaemia and being a father and husband again.

Paul, who works for Honda, signed himself off from work after feeling constantly tired.

After visits to his GP he ended up going to casualty department at the Great Western Hospital.

On April 9 haematologist Dr Norbert Blesing delivered the devastating blow that he had acute myeloid leukaemia.

Paul said: "He said Mr Cole, I've got some very serious news for you - do you want somebody with you?' - I thought blimey this is serious'.

"I told him I'm an engineer - I work with facts and figures so I'd appreciate it if he'd tell me straight."

Paul was told his chance of survival was 48 per cent and that the disease had advanced to 81 per cent of his body.

"I was weeks away from dying - it was that close," Paul said.

Paul's father had died from cancer in January on the same ward Paul was to be treated on so he knew how serious it was.

Paul said: "I was very confused and upset really.

"You go through many stages of depression - why me, why couldn't it be somebody else?

"It was assured to me that there's nothing I could have done."

He has to be away from home for several weeks during chemotherapy, of which he has had two gruelling sessions, and he has to be kept in isolation because his platelets and white blood cells are low so he could easily cut himself and bleed to death or die from a cold.

Paul said one of the hardest parts was wondering whether his daughter would accept him without his hair, or be frightened.

Paul said: "We asked her to rub the top of my head and then she kissed it, which was a bit of a moment really."

To be put on the bone marrow donor list Paul's leukaemia must be nearly completely in remission, but there are no guarantees that there will be an existing match.

Paul said: "We're going to fight this, we're going to get through this, it's not going to beat us."

Donating is simple

A bone marrow donation takes about four hours - blood is taken out of the body through one arm - the stem cells are removed and the blood is fed back in through the other arm.

The stem cells repopulate the bone marrow and produce new blood cells, but the donor is given an injection to boost their stem cells several weeks before.

In order to go on the Anthony Nolan Trust donor database you should ideally be between 18 and 40, fill in a registration form and give a blood sample either at a specially run clinic or at your GP.

Once on the database you may never be called up unless you are a match for a sufferer.

"People think it's broken bones, scraping and drilling - it's just four pin pricks," said Paul.

"This process is giving back lives to those with leukaemia - you are back to how you were before."

"There are small side effects - they may get flu like symptoms - it's nothing major - it's nothing like what I've got."

To find out more about donating bone marrow visit the Anthony Nolan Trust website on www.anthonynolan.org.uk or call their hotline on 0901 88 22 234.


Your Say YourSwindon

Robert Feal-Martinez, Swindon says...
9:22am Sat 5 Jul 08

I think this is another example of how simple it would be to have tens of millions of people on a donor data base, if peoples blood was routinely screened and placed on the register. At a time like this Paul needs to know that survival rates are improving. I have a friend who was diagnosed in 1978, and steadfastly refuse to allow the disease to affect her life, she only had treatment when she felt she need it. Seven other people were diagnosed and visited the same unit as she did, they all have since long died, they followed the treatment plans to the letter. My friend has now been in remission for nearly 20 years. Obviously the threat lingers but her sheer will power sore her through, wanting to see her children and now grandchildren grow up. Good luck to Paul and I hope he finds his donor. Remember where there's life there is hope. Sadly I can never donate due to previous health issues.

Rocky Knuckles, Swindon says...
11:17am Sat 5 Jul 08

feel for this fella, and hope for the sake of him and his family, that he gets the bone marrow op needed..........good luck mate....

Swindon Resident, Swindon, Wiltshire says...
12:52pm Sat 5 Jul 08

I've been on the NHS Bone Marrow Donor register for about 5 years (run by the National Blood Service). Unfortunately my services have not yet been required.

However, I wasn't aware that there was a separate donor register run by the Anthony Nolan Trust. I wonder if they and the NBS share donor volunteer details??

I hope Paul can be matched with that special person very soon.. Good luck...

Paul Cole, Swindon says...
1:37pm Sat 5 Jul 08

Hi Readers,Firstly a big thankyou for all your comments,kind thoughts and questions, i'd like to point out that the NBS and the Anthony Nolan Trust share donor volunteer details to create one large UK database that is also shared with other worldwide donor database's, however there is still no where near enough donors and many of the 7000 people waiting for a donor including me will sadly die without a match.
Paul Cole

Terence, Swindon says...
9:54pm Sat 5 Jul 08

I am completely ignorant regarding these matters. Is it really so simple to give bone marrow? I've heard that it's quite tough on the donor. Exactly what happens, surely they take marrow from the bone rather than from blood? I'd imagine a simple blood donation wouldn't take 4 hours.

Information would be very welcome, I myself would sign up but I would like to be know precisely what I'm letting myself in for.

Paul Cole, Swindon says...
11:12pm Sat 5 Jul 08

Hi Terence, first step is to give a simple blood sample (about a teaspoonfull) and fill out a medical form, if all this is OK then you'd be signed to the register.If you are a match to anyone then you will be given an injection to boost your stem cells a week before, then the procedure would be a needle in one arm taking blood and thru a machine then back into your other arm, this takes 4 hours and you can go home after. The stem cells are collected then given to the patient who needs these to regrow the bone marrow and hence save their life.You may never be a match but will remain on the register until you are 60.Any further questions, I'd be happy to answer...the anthony nolan trust have an excellent website full of information.
Paul Cole

peaceseeker, Swindon says...
12:43am Sun 6 Jul 08

Best of Luck Paul. You've got so much to live for !! I shall be enquiring about the register in the next couple of days and signing up if all is well...

xxstaceyxx, oxford says...
7:57am Sun 6 Jul 08

Hi Id be willing to help you ive only just turnt 18 but still im willing?? wot do i have to do? Stacey x

Paul Cole, Swindon says...
11:17am Sun 6 Jul 08

Hi Stacey,you can either go on the anthony nolan website and download the forms or have them sent to you along with a blood sample kit that you take along to your doctors, post it back along with the completed forms and all being well you will be registered as a donor and if you are a match for someone like me then you will be asked to donate some stem cells, Or you can come along to a anthony nolan clinic that im trying to set up in Swindon if i can find use of a hall/community center free of charge.The third way is to go along to a blood donor clinic and register there...hope this all helps...many many thanks for all your kind wishes, Paul Cole

Paul Cole, Swindon says...
5:10pm Tue 8 Jul 08

Hi readers,
Tyco have kindly offered us the use of a hall to hold a clinic in Swindon on the 15th August 12 till 4pm...here you can find out more info and even register as a donor.
Thanks for all your support and a big thankyou to Tyco...i will update nearer the time.
Paul Cole

deb12340_6, Swindon says...
12:07am Wed 9 Jul 08

Hi Paul,
I have just been onto the Anthony Nolan site, unfortunatley I cannot give at the moment as I have a child under 12 months old, but I will but it into my diary for next year and make sure that I register.
Good luck. Debbie x

Paul Cole, Swindon says...
12:39pm Fri 18 Jul 08

Hi readers,i write this from my hospital bed while having rd3 of chemo,i can confirm the tyco/anthony nolan clinic tyco have kindly offered is going ahead on the 15th August 12pm till 4pm at Admin 1,Tyco Electronics,Site H, Faraday Road, Dorcan, SN3 5HH, again a BIG BIG THANK YOU TO GLENN AND DENISE FOR ALL YOUR HELP in ARRANGING THIS...you guys have given many others the chance to save a life even possibly mine...what can i say..so please please come along have a chat, give a drop of blood have a natter and a cuppa and know you did a good thing...
Much love
Paul

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Paul Cole with his daughter Lucy Paul Cole with his daughter Lucy

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